thank heavens we have cut and paste this mornign... i have just had a very disagreable phone call from a neighbor "i want to sleep and your dogs are keeping me awake" I EXPLAINED I WAS UP WORKING AT THIS HOUR...
i wish he could read how our dog helps eve who has had to deAL WITH 75 broken bones due to brittle bone disease-- OR FIONA STRUGGLES WITH WORDS LIKE PARALYSIS, MORE SURGERY ETC...
TODAYS FYI.. FREEZE DRIED STUFF STICKS TO YORU TEETH BIG TIME... WHETHER IT IS FRUIT OF FREEZE DRIED ICECREAM... IT GETS GUMMY AND STICKS.
THUS ENDITH THE LESSON OF THE DAY.
Man we sure know how to pack all the ..... hmmmm I’m not sure what to call what happened today.... all in one day?!?! A little mix of everything I guess! Well read on and you can decide. It’s definitely good for a smile and probably a giggle too! 🤭
So I’ll start by saying I woke up with a headache and really felt like crawling back in bed BUT it was Lemonade Stand day - not happening! So I pulled up my big girl panties and on we went.
First I ran to the gas station to pick up the local paper because they covered the story about the cheerleaders doing the Miracle Minute for SDP! They were on the front page!!! - so maybe I can do this after all today! (Yes I have a copy to send Carlene!)
Next Eve and I prepped for the lemonade stand and loaded the suburban! Great off we go.... NOPE! I left the key turned and the battery was dead and the other car was blocked in the garage and they were facing opposite directions! Luckily my awesome Dad came to the rescue, but we couldn’t get it to jump so again luckily my Dad drives a pick up and too the rescue again we reloaded everything into his truck! In all the chaos I forgot to pick up the ice on the way! Guess who bailed us out??? Yup ... my dad. Then Erin (Eve’s big sister) was stuck in the driveway due to the dead battery —- I tried to move it enough but .... soooooo..... you know what comes next.... my dad bailed her out!!
Thank you Thank you Thank you Dad!!! Love you!!! (Even though you aren’t on FB!) We made it and did just fine at the Farmers Market. The weather was beautiful but the not a lot of people today.
None the less the 2 cutest & sweetest little girls gave Eve a ziplock bag of money that they themselves earned in their front yard lemonade stand!!!! No matter what already happened or was about to happened just that made it all worth it!!
Sooooo we pack up the suburban- hubby got the battery to charge- and guess what I did!?!?!? Putting one of the coolers in I managed to dump at least a gallon of lemonade in the back! 😤 that’s going to be a pain to clean. . . . . .
Oh yeah and I tried to get a selfie with Finn - I think he missed that part of his Service Dog
YESTERDAY TURNED OUT TO BE QUITE A SPECIAL DAY FOR ELVIS AND I...
SINCE SURGERY I HAVE HAD A REALLY HARD TIME WITH MY MEMORY, I CAN NOT REMEMBER MUCH BECAUSE OF THE MEDICATION I WAS PUT ON, YET THE DIFFICULTY IS WHEN I STOP TAKING THE MEDICATION I AM BATTLING WITH ALL SORTS OF MUSCLE SPASMS TO THE POINT I CAN BARLEY GET MY LEGS MOVE. I DECIDED NOT TO TAKE THE MEDICATION DUE TO THE SIDE EFFECTS BUT THIS HAS RESULTED IN ME STRUGGLING TO JUST TRANSFER FROM MY WHEELCHAIR TO MY BED AND EVERY DAY I CAN FEEL MY LEGS BECOMING WEAKER LIKE THEY DID BEFORE.
MUSCLE SPASMS HAVE BEEN A LARGE PART OF MY LIFE THE PAST FEW YEARS SINCE I FIRST EXPERIENCED PARALYSIS IN MY LEGS AND WHILE I HAVE BEEN PUSHING THROUGH AS BEST I CAN, SINCE GOING BACK INTO A WHEELCHAIR THINGS SEEM TO HAVE DECLINED. THIS IS ONE OF THE REASONS WE HAVE BEEN A LITTLE QUIET RECENTLY, AS WE ARE JUST TRYING TO FIGURE OUT THE BEST STEPS FORWARD FROM HERE.
LAST WEEKEND A GOOD FRIEND OF MINE SAID I SHOULD TRY COME UP TO STAY IN NEW HAMPSHIRE SO ELVIS AND I HEADED UP ON TUESDAY NIGHT FOR AN EXCITING WEDNESDAY! ON WEDNESDAY WE WENT TO A BOOK SIGNING FOR 'LOCKED IN' WRITTEN BY VICTORIA ARLEN. SPEAKING TO SUCH A WONDERFUL PERSON AND HEARING PARTS OF HER STORY REMINDED ME THAT I AM NOT ALONE IN THIS JOURNEY. IT WAS DEFINITELY A DAY FULL OF EMOTIONS AND PROBABLY ONE OF THE BEST DAYS I COULD HAVE SINCE SURGERY. RECENTLY I HAVE DEFINITELY FELT THE FIGHT IN ME WAVERING BUT YESTERDAY I REMEMBERED HOW MUCH FIGHT I STILL HAVE LEFT IN ME AND I FOUND MYSELF SURROUNDED BY PEOPLE WHO SUPPORTED MY GOALS RATHER THEN TELLING ME IT WAS UNACHIEVABLE. ELVIS BEHAVED LIKE THE ANGEL HE IS, LYING BY MY SIDE FOR 6 HOURS AND AFTER TAKING HIS VEST OFF HE GOT A LOT OF PATS FROM EVERYONE. I COULD TRY AND WRITE MORE BUT I DON'T THINK I COULD EXPLAIN IN WORDS HOW MUCH YESTERDAY MEANT TO ME AND REMINDED ME THAT THE ONLY LIMITS IN LIFE ARE THE ONES YOU PUT ON YOURSELF!
I AM ALSO SO VERY HAPPY AND GRATEFUL I GOT TO SPEND A COUPLE DAYS WITH SUCH CLOSE FRIENDS OF MINE IN NEW HAMPSHIRE AS WELL AS AN ADVENTURE IN BOSTON LAST WEEKEND. ELVIS ADORES HIS NEW FRIENDS! WE WERE BOTH VERY UPSET TO LEAVE THEM BUT CAN NOT WAIT TO SEE THEM AGAIN SOON AND GET UP TO SOME MORE ADVENTURES!
THIS MORNING WE WERE BACK IN THE HOSPITAL FOR AN APPOINTMENT AND TOMORROW WE WILL BE BACK IN THE HOSPITAL TO MEET WITH MY SURGEON, GET A NEW CAST AS WELL AS ANOTHER BRACE FITTED! THE PLAN FOR THE WEEKEND IS TO JUST MAKE SURE WE HAVE EVERYTHING PREPARED FOR THE BEGINNING OF THE SEMESTER NEXT WEEK, IT IS GOING TO BE A VERY BUSY SEMESTER TRYING TO BALANCE HEALTH, CLASSES AND WORKING OUT HOW TO BEAT PEOPLE'S EXPECTATIONS! I WILL KEEP YOU ALL UPDATED ON WHAT WE GET UP TOO AS TIME GETS CLOSER!
THANK YOU FOR CHECKING IN WITH US!
LOVE FIONA AND ELVIS ❤️
LOVE FIONA AND ELVIS ❤️